by Mathis Launay
published on
9 February 24 at 3:48 pm
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According to Frans Parkinson, One in fifty French people will be affected by the disease during their lifetime.
Jean-Noël Daguy was working in the city of Nogent-le-Rotrou (Eure-et-Loire) as director of technical services when diagnosed. In 2015.
“I had some symptoms, viz Muscle tears When I played basketball for recreation, Trembling in right hand. But at first I thought there was a blocked nerve somewhere,” introduces Jean-Noel.
Parkinson’s: Diagnosis Announced in Ten Minutes, “Without Tweezers”
So in 2015, he made an appointment with a rheumatologist and after a quick observation, the professional referred him to a specialist Parkinson’s center in Tours (Indre-et-Loire) to see him. A neurologist With an “within the hour” appointment.
“Today, it takes more than a year,” says the man, who will retire from 2021.
At the neurologist, I took three or four steps and he quickly told me without pulling any punches that I had Parkinson’s. I didn’t even stay ten minutes in his office.
Then he finds himself alone, in his car, in the hospital center parking lot and “I burst into tears”. Minutes of wondering: “How am I going to get out of this?” » ; “How am I going to tell my family about this?” »…
An illness which, according to him, was the cause due to stressAnd “definitely faster by a Family trauma in 2013,” says Jean-Noel.
A disease with about 60 symptoms
But almost ten years later, he likes to laugh about it, and that’s okay His philosophy. “My favorite drink? Orangina, shake me,” laughs the former civil servant.
He who suffers Trembling of the right hand And a small one speech disorderLikes to put things in perspective.
Parkinson’s disease isn’t just about tremors, it’s about 60 symptoms, including slowness, rigidity, dysphagia (difficulty swallowing, editor’s note), loss of smell, leg cramps, hallucinations, and more. Everyone has their own illness.
New France Parkinson Committee in Eure-et-Loir
27,000 new cases Will trigger every year, or One every twenty minutes.
A disease that is only hereditary 5% of casesAnd yet, Sylvie Labelle is affected by the disease, just like her mother and grandmother.
Jean-Noël Daguy and Sylvie Labelle are the two new faces of the France Parkinson’s Committee 28 in Nogent-le-Rotrou. He is part of the office established from the end of 2023, of which Damian Voillemot, Nogent is also the representative. “If we don’t show up, there will be no one left in Committee 28,” assures Jean-Noel.
A special first coffee meeting for Parkinson’s in Nogent-le-Rotrou
Through these coffee meetings, Jean-Noël and Sylvie want to provide support, answers and advice especially for continuing physical activity. “You should be as active as possible, stretch every day to stay in shape longer, play sports, with ping-pong and tango topping the list of the best sports for sick people,” says Jean-Christmas.
The event also aims to provide psychological support. “We are told that we have a disease without any precautions”, so for some everything can collapse, “but life is not over”.
“It’s harder to be a caregiver than a patient”
Jean-Noel and Sylvie, both living in the capital of Perche, would like to thank Frans Parkinson to help people suffering from this disease. as well as their caregivers.
Being a caregiver is more difficult than a patient, it is very exhausting and we feel helpless and without answers.
They launch thus Coffee meetings (read above), one Saturday a month, at Le Circonflexe association café, for members, patients and carers.
The first meeting will be held on Saturday, February 10.
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